Good (and I mean REALLY GOOD!), Morning, All!
Writing today some faaaabulous news after having my first appointment with my new nephrologist yesterday. (The one who saved my life, nearly three years ago already and wow, moved to the Alps a couple months ago).
Not only did the new neph and I hit it off, I got some FANTASTIC news! (After asking her about it--word to the chronically ill and wise to always ask.)
Yes, folks at home, after nearly three years of having to choke back this thick, yellow paint-like liquid twice a day, right smack dab in the middle of meals, I learned yesterday that I can FINALLY STOP!
FIIIIIIIIIINALLY!!!!!
The stuff is called atovaquone and it's an antiprotozoal agent, (given to patients on immune suppression who are allergic to Bactrim, an antibiotic).
AND THIS VERY MORNING, I ENJOYED MY FIRST BREAKY IN SO VERY LONG WITHOUT THE HORRID STUFF!!!
It. Was. Glorious.
In less fab news, the reason I saw my new neph ahead of schedule yesterday is due to some ongoing stomach, esophagus, liver-area and right flank issues that have not resolved since the renal colic in October/November. Pain I have felt all too well before too.
Hoping that a few weeks off of this fluorescent goop will result in a marked decrease in the belly/gut/liver problems, cause really, THREE YEARS of this stuff? It's just GOTTA be the problem, it's GOTTA BE.
In any case, soon, I'll have more blood tests and scans done to rule out stones of any kind.
And for anyone out there keeping count, this new deletion brings my daily med count down to only TWO per DAY!!!
TWO!!!
The prednisone and the BP meds and that's IT! (Not counting vitamins or pain managment meds.)
And soon, (in January), I will be totally off the prednisone too!
To think, back when this all started I was taking 10 different meds a day, (plus chemo and other infusions), and now, a blessed, measly TWO!
Hoping hard to soon be blogging about no more abdominal probs at all.
TALK ABOUT AN AWESOME CHRISTMAS PREZZY, and on the Solstice, no less.
So voila, I had to share, especially with those out there feeling like they might never get off the damned med-train.
++++bon Holiday vibes,
: J
Writing today some faaaabulous news after having my first appointment with my new nephrologist yesterday. (The one who saved my life, nearly three years ago already and wow, moved to the Alps a couple months ago).
Not only did the new neph and I hit it off, I got some FANTASTIC news! (After asking her about it--word to the chronically ill and wise to always ask.)
Yes, folks at home, after nearly three years of having to choke back this thick, yellow paint-like liquid twice a day, right smack dab in the middle of meals, I learned yesterday that I can FINALLY STOP!
FIIIIIIIIIINALLY!!!!!
AND THIS VERY MORNING, I ENJOYED MY FIRST BREAKY IN SO VERY LONG WITHOUT THE HORRID STUFF!!!
It. Was. Glorious.
In less fab news, the reason I saw my new neph ahead of schedule yesterday is due to some ongoing stomach, esophagus, liver-area and right flank issues that have not resolved since the renal colic in October/November. Pain I have felt all too well before too.
Hoping that a few weeks off of this fluorescent goop will result in a marked decrease in the belly/gut/liver problems, cause really, THREE YEARS of this stuff? It's just GOTTA be the problem, it's GOTTA BE.
In any case, soon, I'll have more blood tests and scans done to rule out stones of any kind.
And for anyone out there keeping count, this new deletion brings my daily med count down to only TWO per DAY!!!
TWO!!!
The prednisone and the BP meds and that's IT! (Not counting vitamins or pain managment meds.)
And soon, (in January), I will be totally off the prednisone too!
To think, back when this all started I was taking 10 different meds a day, (plus chemo and other infusions), and now, a blessed, measly TWO!
Hoping hard to soon be blogging about no more abdominal probs at all.
TALK ABOUT AN AWESOME CHRISTMAS PREZZY, and on the Solstice, no less.
So voila, I had to share, especially with those out there feeling like they might never get off the damned med-train.
++++bon Holiday vibes,
: J
2 comments:
I'm so happy for you dear
That stuff, besides looking scary & tasting foul also costed 800€ + a bottle.
So, a lil less milk from these cash cows to the big labs.
Halle-F%$-luia!
8)
Indeed!
Less is so often, so much more.
xoxooxoxooxoxoxoxooxoxooxooxo,
: J
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